Through MYeloma Eyes

Host Solomon Alexis shares his eight-year experience living with multiple myeloma, tracing the path from diagnosis through several treatment changes — including Velcade, KRD, a stem cell transplant, and long-term DRD maintenance — and the challenges he’s faced along the way.He explains how combination and targeted therapies work, discusses MRD testing and the T1114 genetic fingerprint, and reflects on new options like venetoclax as concrete reasons for hope grounded in evolving science.

Living with myeloma often feels like living by the coast — you never quite know what the weather will bring. Some days are sunny and energising, some are foggy and slow, and others arrive with full-on storms.
In this episode, I share how learning to check my internal weather each morning has changed everything. From the day my “perfect forecast” suddenly turned to fog, to learning that slowing down isn’t failure — it’s navigation.
 

Pain is often part of living with multiple myeloma, but it doesn’t always appear in the ways people expect. It’s not always dramatic or urgent. Sometimes it’s the quiet, persistent discomforts that become part of everyday life.
 
In this episode of Through MYeloma Eyes, Solomon Alexis shares his lived experience of the different forms pain can take while navigating life with multiple myeloma. From peripheral neuropathy and stomach discomfort to knee pain and ongoing back issues, he reflects honestly on how these sensations affect daily life, movement, and mindset.
 
Solomon also discusses the practical and emotional sides of managing chronic pain — learning to adapt, recognising when pain needs medical attention, and finding ways to keep moving forward even on uncomfortable days.
 
This episode offers a personal and thoughtful perspective for patients, caregivers, and anyone wanting to better understand the everyday realities of living with myeloma.

Hosted by Solomon Alexis, this episode blends honesty, humour, vulnerability, and insight as he shares the emotional, logistical, and psychological labour that often goes unseen. From the mental spreadsheets of everyday decisions, to the art of emotional regulation, to the constant process of adapting to new challenges, This is not an episide about illness.
It’s an episode about being human while living with illness.
 

 
In this powerful special episode of Through Myeloma Eyes, Solomon Alexis shares one of the most personal chapters of his journey — the sudden loss of his mother, a woman deeply woven into every step of his cancer story.
What was meant to be a simple birthday visit to Saint Lucia became a moment that changed everything. Solomon reflects on his mother’s quiet strength, her unwavering presence across time zones, the prayers before chemotherapy, the hospital visits, and the way she held his fears alongside her own.
When she passed unexpectedly, the world shifted — not just in grief, but in identity, protection, and the meaning of support. This episode explores the intersection of cancer, loss, love, and the invisible ways parents remain our anchors, even in adulthood.
 
#myeloma#cancerJourney#livedExperience#ChronicIllness#resilience#patientVoice
 
 
 

 
In this deeply reflective episode of Through Myeloma Eyes, Solomon Alexis opens up about one of the most complex emotional landscapes of living with cancer: survivor’s guilt.
Through powerful personal stories — from losing his younger brother at 21, to the heartbreaking loss of his niece during the pandemic, to the passing of friends and others walking the same myeloma road — Solomon explores the quiet question many survivors carry:
“Why am I still here… when they aren’t?”
 
#myeloma#cancerJourney#livedExperience#ChronicIllness#resilience#patientVoice
 
 
 

In this episode of Through Myeloma Eyes, Solomon explores what patient voice really means — beyond slogans, beyond tick‑box exercises, and beyond the margins of clinical documents.
Drawing on years of involvement in research design, clinical trial reviews, and patient advisory groups, Solomon highlights a simple truth:Data shows what is happening… but lived experience explains what it means.
From the hidden realities behind quality‑of‑life scores to the honesty found in patient forums, this episode uncovers why patient insight isn’t a “nice to have” — it’s essential. Solomon shares how patients bring context, clarity, and credibility to science, ensuring research answers the questions that truly matter.
This is an episode for clinicians, researchers, patients, and anyone navigating both worlds.A reminder that patient voice isn’t noise in the system — it’s wisdom at the table.
 

In this episode, the host shares his experience starting daratumumab (D) as the next step in long-term multiple myeloma care. He describe the decision-making conversation with his medical team, the treatment day with pre-medications and monitoring, and the emotional rhythm of living with an incurable cancer.
Rather than dramatic moments, the episode emphasises continuity: diagnosis, treatment, stability, and adjustment. Solomon encourages listeners to ask questions, take time with decisions, and adapt as the journey evolves.

Solomon Alexis reflects on how myeloma reshapes relationships — who fades away, who quietly stays, and the awkward moments in between.He explores the cost of protecting loved ones, the value of steady presence over grand gestures, and invites listeners to notice a relationship that surprised them since illness entered their life.

Host Solomon Alexis shares a personal account of receiving a second cancer diagnosis — treatable thyroid cancer — while already living with an incurable cancer. He describes the creeping fear, the clinical realities of surgery and recovery, concerns about his voice, and the visible and invisible scars that follow.This episode emphasizes that relief and anxiety can coexist, survivorship is not a straight line, and it’s okay to feel scared. Solomon encourages listeners to take time, accept support, and hold onto hope as they navigate unexpected chapters.